Wednesday, 9 March 2016

Sultana is a happy and busy person today

At 21, Sultana Shaheen, is the busiest person in the house as she cooks, dusts, washes, rinses, irons, sews, and if time permits, enjoys reading children’s story books. It is hard to believe that she is the same Sultana who had lost her vision when she was barely 10 years old due to xeroderma, a genetic disease that causes a serious skin rash exacerbated by exposure to sunlight with multiple complications of the eye. Sultana is one of 3 siblings who developed xeroderma in a family of 14 children. She dropped out of school and also had to cope with the accompanying dwarfism.

For more than 10 years she stayed at home fearing social stigma. Sultana dreaded undergoing a corneal transplantation surgery until her brother, Md Anwar, convinced her of how he had benefitted from his eye surgery. Knowing he was fully using his restored vision, moving independently outside their home, and going to the Masjid for Namaz and for teaching the Quran, Sultana took the bold step of consenting for her own eye surgery on 1 October 2015.

Now that she can see with some vision restored in her right eye, Sultana is very enthusiastic about keeping a busy routine at home, and is raring to undergo a corneal transplantation in her second eye too.

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